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Booklets, reports and guides

Action for M.E.'s booklets, reports and guides give you in-depth information on managing your M.E. You can download them using Adobe Acrobat to read online. Or you can print our publications list to order a printed copy for easy reference.


Future of CareFuture of Care (England) consultation report 2009

Our response to the Government Green Paper Shaping the Future of Care Together, which was informed by a survey of 281 people.






Faces of M.E.Faces of M.E. awareness poster

Eyecatching A4 poster which signposts people to the information and support they need. This poster can be used in conjunction with our Face of M.E. leaflet which explains in a simple way what M.E. is.

Both items are free of charge.





No One Written OffNo one written off: problems and potential solutions for people affected by chronic fluctuating conditions

Points raised through a national consultation involving 1162 people with M.E. and their carers in response to the Government's welfare reform proposals.




What Progress?M.E. 2008 : What progress?

Initial findings of a national survey of over 2,760 people with M.E. focusing on their health and welfare, published M.E. Awareness Week, May 2008.

Only available online.

 


All about M.E. - an introductionAll about M.E. - an introduction

This booklet explains what M.E. is, describes common symptoms and possible causes, and gives information on treatments and other approaches that can help.

It is available for free online or at a cost of £3 to non-members for a printed booklet.


Facts and FiguresFacts and Figures

A detailed publication containing all the information we gathered from major surveys undertaken as part of our 2006 'M.E. - More Than You Know' campaign.

It is available for free online or at a cost of £1 to non-members for a printed booklet.

 


Pacing booklet

Pacing

This booklet explains what pacing is and how it can help you to manage your M.E. and work towards recovery. The step by step guide gives information on pacing basics, putting it into practice and frequently asked questions.

It is available for free online or at a cost of £3 to non-members for a printed booklet.


Parent's bookletYour child and M.E.

A comprehensive guide for parents and families of under 18s with M.E., giving information on the medical management of M.E., education, emotional wellbeing and the impact the illness can have on the family as a whole.

It is available for free online or at a cost of £3 to non-members for a printed booklet.


Reseach Summit Report

M.E./CFS Summit Report

This online report describes the aims, presentations, findings and outcomes of the M.E./CFS Summit for Researchers and Clinicians, held November 2006. The event was organised by Action for M.E. in conjunction with the MRC.

 


Executive Summary

M.E./CFS Summit: Executive Summary

An overview of the M.E./CFS Summit for researchers and clinicians, held November 2006. This event was organised by Action for M.E. in conjunction with the MRC. Free online or as a printed booklet.

 


Scottish scoping exerciseScoping Exercise Report - Scottish Government

The Final report of Action for M.E.'s scoping exercise of M.E. in Scotland, submitted to the Scottish Government on 19th October 2007.                                                  

 

 


Child Protection Guide

Child Protection Guidance

Child protection guidance for professionals working in health, social services and education, which aims to dispel myths and clarify issues relating to the diagnosis, management and the care pathway for CFS/M.E. Online only.

 


Men & M.E.Men & M.E.

A detailed publication containing all the information gathered from our surveys ind in-depth research on Men & M.E., as part of our 2007 M.E. Awareness campaign

It is available for free online or at a cost of £1 to non-members for a printed booklet.


Severely Neglected reportSeverely Neglected

A report examining the experiences of severely ill people in accessing health and social care.

It is available for free online or at a cost of £2 to non-members for a printed report.

 


GP GuideGuidance on the Management of CFS/M.E.

Based on the Chief Medical Officer's report, this guide assists GPs in the assessment and management of patients with CFS/M.E.

It is available for free both online and as a printed document.   

 


CMO reportChief Medical Officer's working group report on CFS/M.E. - A guide

Action for M.E.'s guide to the report explaining the key messages and recommendations and giving a balanced look at the report in general.


It is available for free online or at a cost of £4 to non-members for a printed report.


Young People's CMO GuideChief Medical Officer's working group report on CFS/M.E. - Children and young people's guide

An in-depth look at sections of the CMO report with particular relevance to children and young people.

It is available for free online or at a cost of £1 to non-members for a printed report.


M.E. Diagnosis Delay harms health

M.E. Diagnosis: Delay Harms Health

Produced by the M.E. Alliance of national charities, this report highlights the importance of a prompt diagnosis and calls for action from doctors, the government and the
Medical Research Council.

This publication is available for free online.


ManifestoManifesto

Our manifesto, launched in May 2006, calls for increased understanding of the illness, appropriate support - including benefits - and better access to effective services.

It is available for free both online or as a printed booklet.


Our publications have been made possible thanks to donations to Action for M.E. Please consider making a donation to help us continue our work.