News
12 March 2010
Today's news items include: Mother's day gift
11 March 2010
Response to APPG on M.E. final report
10 March 2010
Today's news items include: Asleep on the job
09 March 2010
Today's news items include: Don’t go to sleep on the job
05 March 2010
Today's news items include: Proceed with caution
04 March 2010
Today's news items include: Progress for M.E. support group
03 March 2010
Today's news items include: M.E. Awareness Week
02 March 2010
Today's news items include: Link to Nitric Oxide
01 March 2010
Today's news items include: People must lobby politicians at General Election
26 February 2010
Today's news items include: Joining forces for M.E.
26 February 2010
The next All Party Parliamentary Group on M.E. will meet in Committee Room 18, House of Commons, between 1.30 and 3pm, Wednesday 10 March 2010.
26 February 2010
Researchers from Nijmegen, Netherlands, “cast doubt on the claim that XMRV is associated with chronic fatigue syndrome in the majority of patients.”
25 February 2010
Today's news items include: Time to lobby MPs
25 February 2010
Action for M.E. CEO, Sir Peter Spencer, has appeared live on lunchtime TV to discuss recent clarifications in the law on assisted suicide.
24 February 2010
Today's news items include: Time to end M.E. neglect
24 February 2010
Consultation results on Pathways
23 February 2010
Today's news items include: Joining forces for M.E.
23 February 2010
M.E. manifesto video goes live
22 February 2010
Today's news items include: Joining forces for M.E.
22 February 2010
Further XMRV and CFS studies
19 February 2010
Today's news items include: Joining forces for M.E.
19 February 2010
All three main political parties have answered calls by Action for M.E. and the Association of Young People with M.E. (AYME) to outline their election pledges for people with M.E.
18 February 2010
Today's news items include: CFS virus link questioned
17 February 2010
Today's news items include: Lobby MPs over M.E. issues
16 February 2010
Today's news items include: Don’t be discouraged from trying M.E. therapy
16 February 2010
We are calling on local groups to join us in lobbying parliamentary candidates to sign up to our election manifesto for M.E.
15 February 2010
Today's news items include: Recipe for good health
11 February 2010
Today's news items include: Looking at M.E. with scorn is wrong
11 February 2010
Election manifesto for M.E. – now available online
10 February 2010
Today's news items include: M.E. needs a voice
09 February 2010
Today's news items include: The Government is not doing enough
08 February 2010
Alan Cook CBE is appointed as new Chairman for Action for M.E.
08 February 2010
Today's news items include: The Government is not doing enough
05 February 2010
Today's news items include: Tired all the time
04 February 2010
Today's news items include: Aid for people with M.E.
03 February 2010
Today's news items include: I understand why Lynn chose to die
02 February 2010
Today's news items include: Assisted suicide debate continues
01 February 2010
Today's news items include: End the suffering
29 January 2010
Today's news items include: Lynn's lasting legacy
28 January 2010
Today's news items include: Kay's story
27 January 2010
Today's news items include: The right thing to do
26 January 2010
Today's news items include: Kay cleared of attempted murder
25 January 2010
Today's news items include: Everyone thought I was faking it
22 January 2010
Today's news items include: Lynn feared more hospital abuse
21 January 2010
Today's news items include: Suicide methods researched
20 January 2010
Today's news items include: She was ready to go
19 January 2010
Today's news items include: Mum helped daughter die
18 January 2010
Today's news items include: Case to open today
15 January 2010
Today's news items include: Neurological disease
14 January 2010
Today's news items include: Euthanasia bias for jurors
14 January 2010
The next meeting of the All Party Parliamentary Group on ME will be held 1.30-3pm, Wednesday 10 March 2010, Committee Room 18, House of Commons. The agenda will follow in due course.
13 January 2010
Today's news items include: Kay Gilderdale case to open on Thursday 14 Jan
12 January 2010
Today's news items include: Kay Gilderdale trial
11 January 2010
Today's news items include: Hemmings bags an MBE
07 January 2010
Today's news items include: CFS Link to XMRV?
06 January 2010
New UK research claims there's no link between XMRV and CFS.
06 January 2010
Today's news items include: CFS Link to XMRV?
06 January 2010
Action for M.E. office closed
04 January 2010
Today's news items include: Olympic hope for 2012
01 January 2010
Election manifesto for M.E.
23 December 2009
Today's news items include: Fighting on
22 December 2009
Today's news items include: Carers at Christmas
21 December 2009
The minutes of the last FORWARD ME meeting, chaired by the Countess of Mar, are now available.
18 December 2009
Today's news items include: Urgent funding needed
16 December 2009
Today's news items include: Christmas carols
16 December 2009
Phase 2 of the Tissue Archive feasibility study will begin in January led by the London School of Hygiene and Tropical Medicine.
15 December 2009
Today's news items include: Improvements still needed
15 December 2009
Action for M.E. has received a letter from the Minister for Disabled People, Jonathan Shaw, confirming that any changes to disability benefits will only aim to improve support for disabled people.
15 December 2009
The self-expressed needs of people with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A systematic review is the first report from the National M.E. Observatory project to appear in the peer-reviewed scientific literature.
14 December 2009
Today's news items include: Battling fatigue
11 December 2009
Today's news items include: Lollipop success
10 December 2009
Today's news items include: No need to be lonely at Christmas
09 December 2009
Today's news items include: Skype to ease yuletide loneliness
08 December 2009
Today's news items include: So tired
04 December 2009
Today's news items include: Prevention, treatment and cure needed
03 December 2009
The All-Party Parliamentary Group (APPG) on ME has today launched the interim report on its Inquiry into NHS Service Provision for ME/CFS.
03 December 2009
The All Party Parliamentary Group (APPG) on M.E.'s interim report on its Inquiry into NHS services for people with M.E./CFS, was launched yesterday in the presence of the Rt Hon Mike O'Brien MP, Minister of State for Health Services.
02 December 2009
Natalie joins MEA on air
01 December 2009
Change of venue for the APPG
01 December 2009
Today's news items include: Sick of being tired?
01 December 2009
APPG minutes from Oct 09
27 November 2009
Today's news items include: Keith Jarrett
26 November 2009
Today's news items include: Complementary chat
25 November 2009
Swine flu update
25 November 2009
Today's news items include: Quilting
24 November 2009
Today's news items include: 'Fatigue' is misleading
23 November 2009
Today's news items include: Health coach
20 November 2009
Today's news items include: Firewalk challenge
19 November 2009
APPG agenda 02/12/2009
18 November 2009
Today's news items include: Be heard
17 November 2009
Today's news items include: What’s the alternative?
13 November 2009
Shaping the Future of Care Together consultation response
13 November 2009
Today's news items include: Prevention, treatment and cure needed
12 November 2009
SGPS update
12 November 2009
MRC CFS/ME research workshop
12 November 2009
Today's news items include: West Lothian support
11 November 2009
The postal strikes due to take place 6 and 9 November were called off and an agreement has been reached that no further strikes will be held until at least the New Year.
11 November 2009
Today's news items include: Ode to Lois and Grant for group
10 November 2009
Today's news items include: M.E. presentation
09 November 2009
Today's news items include: A breakthrough for M.E.
06 November 2009
Today's news items include: Candida Albicans
05 November 2009
Today's news items include: Help people with M.E.
04 November 2009
The Communication Workers’ Union has confirmed further strike action will take place on Friday 6 and Monday 9 November.
03 November 2009
Today's news items include: Be heard
02 November 2009
Today's news items include: Foundations laid for future research
30 October 2009
CFS stigmatises and confounds
28 October 2009
Today's news items include: Penalising genuinely ill people
27 October 2009
DWP payments during postal dispute
27 October 2009
Today's news items include: Prevention, treatment and cure needed
26 October 2009
Today's news items include: Research raises questions
23 October 2009
Today's news items include: Funding for research needed
22 October 2009
Today's news items include: Dying with dignity
22 October 2009
A consultation was launched yesterday on the Legacy Paper for the All Party Parliamentary Group (APPG) on M.E.
21 October 2009
Today's news items include: Funding for research needed
21 October 2009
Speaking today at the All Party Parliamentary Group on M.E. in the House of Commons, Yvette Cooper MP, Secretary of State for Work and Pensions, reassured people with M.E. that it was not the Government’s intention to change working-age Disability Living Allowance under current care reform proposals.
20 October 2009
Today's news items include: M.E. research is a step forward
19 October 2009
Today's news items include: We don't deserve this treatment
16 October 2009
Today's news items include: More research needed
15 October 2009
Today's news items include: We need to push for cure
15 October 2009
Urgent: questions for Secretary of State for Work and Pensions
14 October 2009
Today's news items include: Does virus cause M.E.?
13 October 2009
Today's news items include: At last - hope
12 October 2009
The next meeting of the APPG on M.E. will be held: 1.30-3pm, Wednesday 21 October 2009, Committee Room 20, House of Commons.
12 October 2009
XMRV story and other news
10 October 2009
More on yesterday's potential breakthrough
09 October 2009
Researchers at the Whittemore Peterson Institute in Reno, USA have identified genetic material (DNA) from a mouse virus - murine leukaemia virus-related virus (XMRV) - in 68 out of 101 CFS patients (67%) compared to 8 out of 218 (3.7%) of healthy people.
08 October 2009
The next All Party Parliamentary Group (APPG) on M.E. will meet in Committee Room 20, House of Commons, between 1.30 and 3pm, Wednesday 21 October.
08 October 2009
Sheffield ME Group conference and other news
07 October 2009
Workshy - or ill?
06 October 2009
X Factor Olly's mum has M.E.
05 October 2009
Today's news items include: More research needed
05 October 2009
Still pushing for more research
01 October 2009
APPG minutes July 09
01 October 2009
Today's news items include: We need to push for cure
30 September 2009
Today's news items include: Support for research into cause needed
30 September 2009
Our care consultation survey now live
29 September 2009
Today's news items include: More research needed
29 September 2009
Care questions unanswered
28 September 2009
Today's news items include: Cure for M.E.
25 September 2009
Today's news items include: Keith Jarrett article
24 September 2009
Today's news items include: Help protect people with M.E.
23 September 2009
Today's news items include: Have your say
22 September 2009
Today's news items include: Clinic closes down
21 September 2009
Today's news items include: Assisted suicide
20 September 2009
Assisted suicide Pamela Weston said her illness was “entirely physical”
18 September 2009
Today's news items include: Help protect people with M.E.
17 September 2009
Today's news items include: Care is under threat
16 September 2009
Today's news items include: Paying for cuts
15 September 2009
Today's news items include: Charity warns about benefit revamp
14 September 2009
Today's news items include: Tackling misunderstood illness
14 September 2009
As the political parties begin to prepare for the reopening of the Westminster Parliament on 12 October - and for the General Election which must take place by 3 June - Action for M.E. is asking people with M.E. and their carers what specific measures they would like to ask the political parties to sign up to in an election manifesto for M.E.
11 September 2009
Today's news items include: Have your say
09 September 2009
Today's news items include: Take part in our survey
08 September 2009
The next All Party Parliamentary Group (APPG) on M.E. will meet in Committee Room 20, House of Commons, between 1.30 and 3pm, Wednesday 21 October.
08 September 2009
Today's news items include: Campaigning for care
04 September 2009
Today's news items include: We want your views
03 September 2009
Today's news items include: My life in slow-motion
02 September 2009
Today's news items include: Worth a read
01 September 2009
Today's news items include: Lyme disease
27 August 2009
Today's news items include: M.E. alternatives?
24 August 2009
Concerns over care consultation
21 August 2009
Today's news items include: Too little understood about M.E.
20 August 2009
Today's news items include: Award on the cards for cookbook
17 August 2009
Today's news items include: NHS ‘untruths’
14 August 2009
Today's news items include: CFS - a quick guide
13 August 2009
Today's news items include: Payout from holiday company
12 August 2009
Today's news items include: Concern over NHS progress claims
12 August 2009
Swine flu
11 August 2009
Today's news items include: Stoner’s season ruined
10 August 2009
Today's news items include: Support group help
07 August 2009
ESA problems sound familiar
06 August 2009
Probationary police officer wins DDA appeal
05 August 2009
NHS Trust taken to tribunal
04 August 2009
BUPA medical director on CFS/M.E.
03 August 2009
Waveney Trust defends Suffolk service
31 July 2009
Good practice in ME-CFS, the conference to launch the Scottish Good Practice Statement, due to take place in Glasgow, 9 September, will be rescheduled because of swine flu.
31 July 2009
Today's news items include: M.E. & swine flu
30 July 2009
Today's news items include: People should have a choice
29 July 2009
Today's news items include: Taking one day at a time
28 July 2009
Today's news items include: Shirley Conran interview and Keith Jarrett concert review
27 July 2009
Today's news items include: I pigged out after my father's death
23 July 2009
Today's news items include: Careful about clinics
22 July 2009
Today's news items include: I was crippled by M.E.
21 July 2009
Today's news items include: Listen to your body when you have swine flu
20 July 2009
Today's news items include: Cabin crew illnesses spark fears
17 July 2009
Today's news items include: I couldn't even lift a finger
15 July 2009
The Green Paper, Shaping the Future of Care Together, has been published, launching the Government’s consultation on proposals for a National Care Service for adults in England.
15 July 2009
Today's news items include: Voices that need to be heard are too ill
15 July 2009
Calling all nurses
14 July 2009
Today's news items include: Worry for sickness benefit applicants
13 July 2009
Today's news items include: Not in public interest
10 July 2009
Today's news items include: Voices that need to be heard are too ill
10 July 2009
NHS inquiry day 1
09 July 2009
Today's news items include: Go-ahead granted for pesticides
07 July 2009
Today's news items include: Remembering Luke
07 July 2009
Another change of venue for the APPG
06 July 2009
Today's news items include: Kay Gilderdale court hearing
03 July 2009
Today's news items include: Beating fatigue with yoga
02 July 2009
Today's news items include: Car wash needed for people with M.E.
01 July 2009
APPG AGM 8 July reminder
30 June 2009
Today's news items include: Disagreement about treating M.E. patients
29 June 2009
Today's news items include: Judicial reviews
25 June 2009
Today's news items include: Lightning the load
24 June 2009
Today's news items include: Getting the message out there
23 June 2009
Today's news items include: Explaining the casualties of war
22 June 2009
Today's news items include: Raising Awareness with Faces of M.E. campaign
19 June 2009
Today's news items include: Sky asks is science closer to a cure?
19 June 2009
APPG AGM update
17 June 2009
Today's news items include: Launch of M.E. Think Tank
17 June 2009
APPG patient questionnaire online
16 June 2009
Sky news link plus
A summary of recent M.E. related stories in the news. Headlines appearing in the media as dated:
11 June 2009
Today's news items include: Helping me to cope
10 June 2009
Today's news items include: M.E. help
09 June 2009
Today's news items include: The heart of medical matters with Dr Rosemary Leonard
08 June 2009
Today's news items include: Yvette Cooper thrives under Brown
05 June 2009
Today's news items include: MS not M.E.
04 June 2009
Today's news items include: Too tired of it all
04 June 2009
The next meeting of the All Party Parliamentary Group on M.E. will be the Annual General Meeting, which will take place at 1.30pm – 3.30pm Wednesday 8 July, in Committee Room 20, House of Commons, London.
03 June 2009
NHS inquiry
03 June 2009
Today's news items include: I feel like I'm wading through on treacle
02 June 2009
Today's news items include: £13 home testing M.E. kit
01 June 2009
Today's news items include: Proving M.E. isn’t all in the mind?
28 May 2009
Today's news items include: Fibromyalgia and CFS are not the same
26 May 2009
Today's news items include: Help us to raise M.E. awareness
22 May 2009
Stories include: M.E. Awareness coverage of AYME, which includes a feature in Woman's Hour
21 May 2009
Today's news items include: Raising Awareness with Faces of M.E. campaign
20 May 2009
Today's news items include: Managing with my M.E.
19 May 2009
Today's news items include: I just want to live a normal life
18 May 2009
Today's news items include: Clare Francis talks about charities
15 May 2009
Today's news items include: All of a sudden I could barely stand
15 May 2009
Two healthcare initiatives for people with M.E. were press launched in the Scottish Parliament yesterday, 14 May 2009.
14 May 2009
Today's news items include: Daytime with Danny & Lou
13 May 2009
Today's news items include: Raising Awareness with Faces of M.E. campaign
12 May 2009
Today's news items include: Help raise M.E. awareness
11 May 2009
Today's news items include: Getting her voice heard
08 May 2009
Today's news items include: M.E. facts to face
07 May 2009
Today's news items include: Help Action for M.E. raise awareness
06 May 2009
Today's news items include: Action for M.E.'s awareness raising campaign
05 May 2009
Continued coverage of Kay Gilderdale plus lots of local news.
05 May 2009
Photographs and stories of people with M.E. are featured in a poster, leaflet and webpage set up by Action for M.E., to mark M.E. Awareness Week (10-16 May).
01 May 2009
Today's news items include: Kay bailed until 3 July
30 April 2009
Today's news items include: France does have M.E.
30 April 2009
Countess of Mar quotes people with M.E. and recommends Action for M.E. consultation report to DWP
29 April 2009
Today's news items include: Karen runs London Marathon for Action for M.E.
28 April 2009
Today's news items include: Big benefits for people using addiction drug
24 April 2009
Today's news items include: The need for wheelchairs
23 April 2009
Today's news items include: No justice in charging Kay Gilderdale
22 April 2009
Today's news items include: Kay Gilderdale bailed until 30th April
21 April 2009
Today's news items include: Now using his own research
20 April 2009
Today's news items include: Gilderdale family express disappointment and sadness at prosecution
17 April 2009
Today's news items include: Kay Gilderdale
16 April 2009
Today's news items include: Bi-aura therapy
15 April 2009
Today's news items include: CFS anxiety eased by probiotics
14 April 2009
Today's news items include: Hepatitis jab for babies
09 April 2009
Observatory workshop
09 April 2009
Today's news items include: Johnny Davis
08 April 2009
Today's news items include: Esther Ranzten gets a CBE
07 April 2009
Today's news items include: Kevin Tripp's partner and sister appear on This Morning
06 April 2009
Today's news items include: Is the cervical cancer jab safe?
03 April 2009
Today's news items include: Experts say there's a lack of understanding
03 April 2009
APPG press release: NHS inquiry
02 April 2009
Today's news items include: Kevin Tripp killer sentenced
01 April 2009
Today's news items include: M.E. is not a mental health problem
31 March 2009
Today's news items include: M.E. Awareness Month
30 March 2009
Today's news items include: CBT and M.E.
27 March 2009
Today's news items include: Glandular Fever
26 March 2009
Today's news items include: Dare To Fly
25 March 2009
Today's news items include: NICE challenge rejected
24 March 2009
Brief mentions of M.E. and CFS in today's media
23 March 2009
Today's news items include: Mothering Sunday
20 March 2009
Today's news items include: Raising the understanding of M.E.
19 March 2009
Today's news items include: CFS won't ruin my life
19 March 2009
Reading and debate
18 March 2009
An APPG inquiry into NHS service provision for people with M.E. will be the focus of the next meeting of the All Party Parliamentary Group on ME to be held 1.30-3pm, Wednesday 1 April 2009, Committee Room 20, House of Commons.
18 March 2009
BMJ on NICE decision
17 March 2009
Today's news items include: Life after M.E.
16 March 2009
NICE judicial review press coverage
15 March 2009
Today's news items include: Is salt a natural antidepressant?
13 March 2009
Today, the judge ruled in favour of the National Institute for Health and Clinical Excellence (NICE) regarding its guideline on the diagnosis and management of M.E. (Myalgic Encephalomyelitis/ Encephalopathy) and chronic fatigue syndrome.
13 March 2009
Today's news items include: Open verdict for death of M.E. woman
12 March 2009
Today's news items include: Mostly in the mind
11 March 2009
Today's news items include: Does he love me?
10 March 2009
Welfare Reform - Committee amendments
10 March 2009
Today's news items include: Advice about M.E.
09 March 2009
Kay Gilderdale's bail extended
06 March 2009
Diabetes breakthrough sounds familiar
04 March 2009
Research award for childhood M.E.
03 March 2009
Alkaline diets plus Karen's creative fundraising efforts
03 March 2009
APPG April 2009
03 March 2009
Action for M.E. and AYME, the Association of Young People with M.E., are again supporting the CFS/ME Clinical & Research Network and Collaborative (CCRNC) Conference which will take place in Milton Keynes, 23-24 April 2009.
02 March 2009
Action for M.E. response to recent press on LP
27 February 2009
Woman convicted: Kevin Tripp's killer caught on camera
26 February 2009
Perception of mental exhaustion, exercise and CFS
25 February 2009
Action for M.E. has written to every member of the Welfare Reform Bill Committee, asking them to ensure that the new legislation includes adequate safeguards for people with long-term fluctuating conditions like M.E.
25 February 2009
USA drug agency delays decision on Ampligen
24 February 2009
LP strikes again
20 February 2009
Today's news items include: Should I still be diving?
19 February 2009
Today's news items include: Hearing for manslaughter of Kevin Tripp begins
18 February 2009
Today's news items include: CFS is a terrible thing to cope with
17 February 2009
Today's news items include: National charity supports guidelines
16 February 2009
Today's news items include: Landmark judgement awaited
13 February 2009
Today's news items include: M.E. treatments are challenged in High Court
12 February 2009
Today's news items include: Two ME sufferers challenge NICE guidance on M.E.
11 February 2009
Today's news items include: National charity supports guidelines
10 February 2009
Today's news items include: Boost your energy
09 February 2009
Today's news items include: New lease of life with acupuncture
06 February 2009
Today's news items include: More training needed for practice nurses treating CFS
06 February 2009
Employment and Support Allowance update
05 February 2009
Today's news items include: I healed the Lord of The Dance
05 February 2009
Medical guidelines on the diagnosis and management of M.E. and chronic fatigue syndrome will be challenged in a judicial review at the Royal Courts of Justice, The Strand, London, 11-12 February 2009.
04 February 2009
Today's news items include: M.E. support meeting
03 February 2009
Today's news items include: Science of healing conference
02 February 2009
Today's news items include: I won the fight against fatigue
02 February 2009
The presentation which Professor Julia Newton made to the Cross Party Group on M.E., 21 January 2009, is now available online.
30 January 2009
Today's news items include: More letters about the Lightning Process
29 January 2009
Today's news items include: Funeral of Lynn Gilderdale
28 January 2009
Today's news items include: 'Living library' event
27 January 2009
Today's news items include: Course to help those with long-term health conditions
26 January 2009
Today's news items include: Having M.E.- Dr Jenny Watts is interviewed about her life, M.E. and what medication she is currently taking
23 January 2009
Welfare Reform races forward
23 January 2009
Today's news items include: Fight or flight
22 January 2009
Today's news items include: Only on Tuesdays
21 January 2009
Today's news items include: Supporters attack penalty given to M.E. man
20 January 2009
Today's news items include: M.E. man spared jail for cannabis use
19 January 2009
Today's news items include: Carbon monoxide poisoning has some similar symptoms to M.E.
17 January 2009
Professor Julia Newton presents her findings to the CPG
16 January 2009
Today's news items include: Lightning process didn't work for M.E.
15 January 2009
Today's news items include: Dyslexia is real
14 January 2009
Today's news items include: After CFS, how should I start improving my fitness?
13 January 2009
Prosecuting parents of assisted suicide is not in the public interest.
12 January 2009
Action for M.E. partner Disability Alliance says genuinely ill people could be worse off.
09 January 2009
Today's news items include: Is M.E. treatment too good to be true?
08 January 2009
Today's news items include: Low level cortisol - a marker for M.E.
07 January 2009
Today's news items include: Prime Minister's question time
06 January 2009
Today's news items include: Low level cortisol - a marker for M.E.
05 January 2009
Scottish call for nurses and doctors better versed in treating M.E. to actively combat the disease.
30 December 2008
Today's headlines include: Jonathan Ansell reveals he has had M.E. since University
24 December 2008
Today's headlines include: Worried about M.E.
23 December 2008
Today's headlines include: Help for people with M.E.
22 December 2008
Today's headlines include: Advice about M.E.
22 December 2008
DWP's White Paper is published
19 December 2008
Today's headlines include: CFS Research Foundation
18 December 2008
Today's headlines include: Support from your M.E. group
18 December 2008
Research hopes for MRC multi-disciplinary panel
17 December 2008
Today's news items include: Proper treatment of M.E.
16 December 2008
Today's headlines include: Help from your M.E. group
15 December 2008
Today's headlines include: Millions with CFS will benefit from new research
15 December 2008
The minutes of the All Party Parliamentary Group meeting held October 2008 are now available online.
12 December 2008
Today's headlines include: 14 years' suffering
11 December 2008
Lynn mourned in Times letter
10 December 2008
Today's headlines include: The agony of watching a daughter endure M.E.
10 December 2008
White Paper published
09 December 2008
Today's headlines include: Lynn Gilderdale
08 December 2008
Today's headlines include: Lynn Gilderdale
08 December 2008
Action for M.E. is extremely saddened to hear news of the death and possible murder of Lynn Gilderdale from East Sussex. Lynn had been severely affected by M.E. for many years.
05 December 2008
Today's headlines include: People with M.E. hit by reforms
03 December 2008
Today's headlines include: New CFS treatments
02 December 2008
Today's news items include: Suzanne Shaw
01 December 2008
Today's news items include: She won't listen to us
01 December 2008
Queen's speech: "There are no jobs but we expect the sick to work"?
28 November 2008
Today's news items include: Distant healing study
27 November 2008
Today's news items include: Humberside Police Lifestyle project
26 November 2008
Today's news items include: She thinks I'm holding her back
25 November 2008
Today's news items include: Lightning Process - 11 letters from readers discussing their experiences and opinions of the Lightning Process.
24 November 2008
Today's headlines include: People with M.E. hit by reforms
21 November 2008
Today's headlines include: She thinks I'm holding her back
20 November 2008
Today's headlines include: Businesses have to invest in disabled employees
19 November 2008
Today's headlines include: People with M.E. fear reforms
18 November 2008
Today's headlines include: Welfare reforms are making things worse
17 November 2008
Today's headlines include: Pesticides campaigner wins seven-year battle
14 November 2008
Today's headlines include: Why am I tired all the time?
13 November 2008
Today's headlines include: Esther risks her dignity to survive I'm a Celeb
12 November 2008
A summary of recent M.E. related stories in the news.
10 November 2008
A summary of recent M.E. related stories in the news.
07 November 2008
A summary of recent M.E. related stories in the news.
06 November 2008
A summary of recent M.E. related stories in the news.
05 November 2008
A summary of recent M.E. related stories in the news.
04 November 2008
The deadline for comments on the draft terms of reference for the APPG Inquiry into English NHS service provision is Friday 14 November 2008.
04 November 2008
A summary of recent M.E. related stories in the news. Headlines appearing in the media as dated:
03 November 2008
A summary of recent M.E. related stories in the news.
Headlines appearing in the media as dated:
31 October 2008
A summary of recent M.E. related stories in the news.
30 October 2008
A summary of recent M.E. related stories in the news.
29 October 2008
A summary of recent M.E. related stories in the news.
28 October 2008
A summary of recent M.E. related stories in the news.
27 October 2008
A summary of recent M.E. related stories in the news.
24 October 2008
A summary of recent M.E. related stories in the news.
23 October 2008
A summary of recent M.E. related stories in the news.
22 October 2008
We are pleased to reinstate the Daily Press Summary service on our website, which will provide you with a summary of recent M.E.-related stories in the news.
22 October 2008
Welfare reform consultation response
21 October 2008
People with chronic illness "terrified" by welfare reform proposals
14 October 2008
The Department of Work and Pensions (DWP) held its third consultation event for the Welfare Reform Green Paper, No one written off, in Edinburgh on Thursday 9 October.
09 October 2008
The Welfare Reform Green Paper has been the focus of a number of meetings this week.
30 September 2008
The last meeting of the All Party Parliamentary Group on M.E. was held at 1pm, Tuesday 2 July 2008, House of Commons.
23 September 2008
James Purnell MP, Secretary of State for Work and Pensions, has agreed to address the next APPG on M.E., about the Welfare Reform Green Paper, No one written off: reforming welfare to reward responsibility.
22 September 2008
Many thanks to everyone who took the time and energy to respond to our Welfare Green Paper consultation survey for people with M.E.
16 September 2008
The Department for Work and Pensions (DWP) held a consultation forum in London.
12 September 2008
DWP Minister to attend next APPG
11 September 2008
The next meeting of the Cross Party Group on M.E. will take place in the Scottish Parliament on Wednesday 17 September at 1pm in Committee Room 3.
05 September 2008
A new questionnaire for carers about the recent Welfare Reform Green Paper, No one written off: reforming welfare to reward responsibility, is now online.
02 September 2008
Action for M.E. funds two pilot research projects...
22 August 2008
A questionnaire about the recent Green Paper on welfare reform is now available to complete online, focusing on the welfare benefits and employment experiences of people with M.E.
30 July 2008
In its initial response to the Green Paper on Welfare Reform, presented in the House of Commons on 21 July, Action for M.E. welcomes the Government's proposals to help people to remain in work, to simplify the benefits system and to increase the higher minimum income guarantee from £86.35 to £102.10 for those with the greatest need.
29 July 2008
Bristol volunteers for Action for M.E. focus group needed!
23 July 2008
The transcript of BBC Radio Four's You and Yours programme, featuring Action for M.E. member Jemma Packett, is now available online.
23 July 2008
All doctors in the UK will have to undergo annual reviews which could see poor performers losing their licence, according to plans published today by the Chief Medical Officer.
22 July 2008
The Green Paper on Welfare Reform, presented in the House of Commons today, is now available online and will be open for consultation until 22 October.
21 July 2008
In an interview on GMTV this morning, Work and Pensions Secretary James Purnell said that it will be easier to identify people with M.E. and chronic fatigue under the new welfare system because the testing is based on the advice of people with M.E. and assessment itself will be undertaken by an independent doctor.
17 July 2008
The BUPA Great North Run is the world's biggest Half Marathon. Taking place in Newcastle in autumn it attracts up to 50,000 people each year. Many of the runners raise money for important causes.
11 July 2008
Contribute to the discussion blog on the BBC Five Live Breakfast Show's website. We contacted them after a guest on the show last week commented that M.E was 'a form of depression'. Let's make our voices heard!
06 June 2008
The next meeting of the All Party Parliamentary Group on ME will take place on Wednesday, July 2, when there will be a presentation on child protection issues affecting families where there is a young person with ME.
13 May 2008
As the government fights to prove that it understands the hardship faced by the most vulnerable people in society, a national survey published this week shows that many people who are severely affected by Myalgic Encephalomyelitis/ Encephalopathy (M.E.), have to struggle through the appeals system before they are awarded Disability Living Allowance (DLA).
12 May 2008
Today we present the initial findings of a survey by Action for M.E. and the Association of Young People with ME (AYME), focusing on health and welfare.
30 April 2008
M.E. Awareness Week takes place this year between 11-17 May, with International M.E. Awareness Day itself on 12 May.
03 April 2008
Thank you very much to everyone who completed our recent survey of health and welfare inequalities across the UK.
01 March 2008
Action for M.E. and the Association of Young People with M.E.s joint survey of health and welfare inequalities amongst people in the UK who have - or who have had - M.E. is now available online for completion by 31 March 2008.
29 February 2008
Top ten financial PR adviser, Pelham PR and leading corporate stockbroker, Panmure Gordon, came to blows outside the Royal Exchange recently - but it was all in a very good cause.
08 February 2008
Action for M.E. Chief Executive, Peter Spencer, will be one of the speakers at a conference of healthcare professionals at the Royal Society of Medicine (RSM) in London, 28 April 2008.
08 February 2008
The report of the scoping exercise of M.E. in Scotland, which Action for M.E. undertook on behalf of the Scottish Government, is now available online.
08 February 2008
A fun, fast, fundraising competition is about to hit cities across the UK - and it aims to raise money for Action for M.E.
10 January 2008
The next meeting of the All Party Parliamentary Group on M.E. will be held on Tuesday 22 January 2008, 4pm-5.30pm
Committee Room 17, House of Commons. The agenda is as follows:
12 December 2007
The next meeting of the All Party Parliamentary Group on M.E. will take place in Committee Room 17, House of Commons, at 4pm on Tuesday 22 January.
21 November 2007
There have been stories in the media about a possible legal challenge to the NICE guidelines. Action for M.E believes this challenge is misguided and will not be supporting it.
14 November 2007
Transcripts of the BBC Radio 4 You and Yours series on M.E., which was broadcast 2-12 November 2007, are now available online
06 November 2007
The Radio 4 focus on M.E. moves to a later slot today, as the lunchtime You and Yours programme hands over the reins to Case Notes, which is broadcast 9pm-9.30pm.
06 November 2007
The National M.E. Research Observatory is asking people with M.E. to help them to identify some of the different services currently available for people with M.E.
24 October 2007
The Action for M.E. 2008 Fundraising Trek along the Great Wall of China will feature on BBC 2 Lifeline programme, 2pm today, Wednesday 24 October 2007.
24 October 2007
Members of M.E. charities are being asked to help raise the profile of M.E. in Westminster by writing to their constituency MP, asking him or her to apply for a Commons adjournment debate on M.E.
22 August 2007
Press release
22 August 2007
National Institute for Health and Clinical Excellence (NICE) has published its guidelines on the diagnosis and management of M.E. (myalgic encephalomyelitis / encephalopathy) or chronic fatigue syndrome today, 22 August 2007.
17 August 2007
The Occupational Health guideline which was published by NHS Plus in October 2006 has been the subject of great concern to charities and other organisations serving the interests of people with M.E.
01 August 2007
Action for M.E. and AYME, the Association of Young People with M.E., are supporting the National Network for CFS/M.E. Therapists and National NHS Collaborative Conference, which will be held in Milton Keynes, 4-5 October 2007.
31 July 2007
The minutes of the All Party Parliamentary Group meeting held 12 July 2007, Committee Room 17, House of Commons, are now available.
31 July 2007
Unfortunately our Press Assistant, Chloe Stirk, has left Action for M.E. to take up a new post.
27 July 2007
Action for M.E. Chair Dr Trish Taylor will be taking part in a discussion on BBC Radio 4's 'You and Yours' at 12pm on Monday, 30 July.
20 July 2007
The tenth and final version of the Department for Work and Pensions guideline on M.E./CFS is published today, 20 July 2007.
13 July 2007
The meeting of the All Party Parliamentary Group yesterday, 12 July 2007, in the House of Commons was attended by Dr Des Turner MP, who Chairs the APPG, Dr Ian Gibson MP, Secretary of the Group and leader of last year’s Inquiry into the progress of scientific research on M.E., Celia Barlow MP and John Bercow MP.
02 July 2007
We have produced a short survey for you to give us your opinion of our 'Men & M.E.' awareness campaign.
29 June 2007
We are currently carrying out a scoping exercise on M.E. services on behalf of the Scottish Executive. We hope to consult as widely as possible with people with M.E and would, therefore, be very grateful if you could complete our questionnaire.
21 June 2007
The next APPG meeting, chaired by Dr Des Turner MP, will take place: 1.30 – 3pm on Thursday 12 July 2007 in Committee Room 17, House of Commons, Palace of Westminster (entry via St Stephen’s entrance).
06 June 2007
Action for M.E. has released ‘Men & M.E.’, a publication containing a range of information about M.E., gathered from two recent major surveys.*
18 May 2007
The meeting of the All Party Parliamentary Group met yesterday, 17 May 2007, in the House of Commons. Dr Ira Madan, Director of the NHS Plus project, said that she would be happy to include the WHO definition of M.E. as a neurological illness and was open to suggestions for further rewording of the guidance leaflets, if appropriate evidence was made available to her.
08 May 2007
On 29 April 2007, the Sunday Times printed an article by Rod Liddle, (Comment, April 29, p 15), in which he speculated about whether Brian Paddock, Britain’s highest ranking homosexual policemen, was retiring early “perhaps” because “he is suffering from a fashionable camp affliction such as RSI or M.E.”
02 May 2007
Dr Ira Madan, Director of the NHS Plus project which recently published occupational health guidance on M.E., will appear before the next All-Party Parliamentary Group on M.E.
01 May 2007
MEN who fear they have M.E. were today urged to visit their doctors, as it was revealed that thousands are putting their long-term health at risk through delayed diagnosis.
30 April 2007
Sir Peter Spencer KCB takes up his new post today as Chief Executive of Action for M.E., the national charity for people with M.E.
25 April 2007
A range of national companies, organisations and charities have expressed their support of Action for M.E.'s 2007 'Men and M.E.' campaign.
19 April 2007
M.E. Awareness Month – MAY 2007 Action for M.E., the UK’s leading M.E. charity, is launching M.E. Awareness Month by announcing research results showing how the illness impacts on men – and how delayed diagnosis is putting thousands in danger.
05 April 2007
Before Members of the Scottish Parliament stood down earlier this week, 2 April 2007, prior to elections on 3 May, a number of Parliamentary groups and committees prepared legacy papers to inform the work of the next session.
26 March 2007
Support Action for M.E. every time you use the web!
25 March 2007
Action for M.E.’s theme for its 2007 campaign is Men and M.E. The campaign will include the launch of the results of a major survey undertaken earlier this year to discover how the illness impacts on men – including how it might affect men’s sense of masculinity and identity, and their likelihood of getting quickly diagnosed. A ‘fast’ diagnosis (i.e. within one year) has been shown to significantly reduce recovery time*.
02 March 2007
The meeting of the All-Party Parliamentary Group (APPG) on M.E., held at Westminster on 22 February 2007, was dominated by discussion about the draft clinical guideline on CFS/M.E., produced by the National Institute for Health and Clinical Excellence (NICE).
21 February 2007
Prof Michael Rawlins, Chair, National Institute for Health and Clinical Excellence, is unable to attend the meeting of the All-Party Parliamentary Group on ME at Westminster on Thursday (22 February 2007).
15 February 2007
The next APPG meeting, chaired by Dr Des Turner MP, will take place: 1.30 – 2.30pm on Thursday 22 February 2007 in Committee Room 17, House of Commons, Palace of Westminster (entry via St Stephen’s entrance).
14 February 2007
14th February is a day for celebrating the love we have for the people most close to us.
13 February 2007
If you are a man with M.E., you can now fill in our 'Men and M.E.' survey.
06 February 2007
A statement by national M.E. organisations on Version 9 of the Department for Work and Pensions (DWP) CFS/ME guidance document was discussed at the Cross Party Group (CPG) on M.E. at Holyrood, Edinburgh, 31 January 2007.
02 February 2007
Action for M.E.'s 2007 campaign
01 February 2007
Sir Michael Rawlins, Chairman, National Institute for Health and Clinical Excellence, will appear before the next All-Party Parliamentary Group on M.E.
29 January 2007
The National Institute for Health and Clinical Excellence (NICE) has announced that the publication date for their guideline on CFS/M.E. has been postponed from April until 22nd August 2007.
23 January 2007
Action for M.E. is launching ‘Friends of Action for M.E.’ on Tuesday 23rd of January at a drinks party sponsored by Pelham PR in London. This is a new scheme which we hope will get people involved with and supporting our work with regular donations.
17 January 2007
Having M.E. can make the smallest task a marathon effort. So, if you’re able, why not take part in a race and raise much needed funds for our fight against M.E?
19 December 2006
Action for M.E. has joined with other leading M.E. charities to express concern at the draft NICE guidelines.
30 November 2006
A BIG thank you to all our amazing London Marathon 2006 team! It was a great day and all of our 20 runners completed the course and raised thousands of pounds for our work for people with M.E. Congratulations to them!!
27 November 2006
Action for M.E. believes that effective guidelines are required to ensure that M.E./CFS is properly diagnosed, treated and managed.
27 November 2006
On Sunday 26th November the Gibson Inquiry report into progress in scientific research into M.E. / CFS was published, following five oral hearings and a review of other verbal and written evidence from charities, researchers, health professionals, people with the illness and carers.
21 November 2006
A meeting of the APPG, chaired by Des Turner MP, took place yesterday, 16 November 2006, in Committee Room 17, House of Commons. It was attended by MPs Ian Gibson, Steve McCabe, Andrew Stunell, Tony Wright and Betty Williams, an observer from NICE, representatives from a number of M.E. organisations, people with M.E. and carers.
17 November 2006
Action for M.E. would like to thank all those people who took part in our survey on the Draft NICE guideline on M.E./CFS.
13 November 2006
Over 30 research scientists and clinicians joined representatives of the Medical Research Council (MRC) and Action for M.E., 8-9 November 2006, at Latimer conference centre, Chesham, to identify opportunities for biomedical research into M.E.
03 November 2006
We want to know what you think about the NICE draft guidelines, so we have devised a survey for you to complete.
02 November 2006
The next meeting of the APPG, chaired by Des Turner MP, will take place:
1.30 – 2.30pm Thursday 16 November 2006
Committee Room 17, House of Commons,
Palace of Westminster
(Entry via St Stephen’s entrance)
30 October 2006
Action for M.E. has just released ‘Facts and Figures’, a publication containing a range of information about M.E., gathered from two recent major surveys.
29 October 2006
The official progress report on the first two years of the specialist M.E. services has recently been published.
05 October 2006
Action for M.E. was represented at a meeting called today by the National Institute for Health and Clinical Excellence (NICE), to discuss how the draft guideline on the diagnosis and management of M.E., published 29 September 2006, should be implemented.
29 September 2006
While Action for M.E. welcomes the fact that the draft NICE guideline on the diagnosis and management of M.E. is available for public consultation, we are very concerned about its recommendation that graded exercise and cognitive behavioural therapies should be the first therapies of choice, even for people who are mild to moderately affected by M.E.
28 September 2006
Minutes for July’s meeting of the All Party Parliamentary Group are available to read in the Campaigning section of this website.
14 September 2006
Action for M.E. and the Medical Research Council (MRC) have invited researchers from a broad range of specialisms and interests to attend a Research Summit on M.E. in November 2006.
03 August 2006
The Department of Work and Pensions is considering comments by a number of M.E. organisations, including Action for M.E., on version 8 of the draft guidance on M.E. for Disability and Carers Service decision makers, following a meeting in London on 20 July 2006.
27 July 2006
Action for M.E. is undertaking concerted action, to address the serious concerns expressed by service users, regarding the continued funding of a number of specialist M.E. services.
18 July 2006
The meeting of the All-Party Parliamentary Group on M.E. will go ahead on Thursday ¬20 July 2006 but without the Secretary of State for Work and Pensions, the Rt Hon John Hutton MP, who has been called to a Cabinet meeting which is taking place at the same time.
07 July 2006
Trish Taylor, the Chair of Action for M.E., gave a presentation to Dr Ian Gibson’s parliamentary inquiry into M.E.
03 July 2006
The Secretary of State for Work and Pensions, John Hutton MP, has agreed to appear before the next open meeting of the APPG on M.E. He will speak about his Department’s controversial proposals to revise the medical guidance on ME/CFS for Disability Living Allowance and Carer’s Allowance decision-makers.
26 June 2006
More Than you Know - the economic impact.
26 June 2006
It is not AfME policy to comment on individual cases but the death of Sophia Mirza has received considerable media coverage.
09 June 2006
Parliamentary Under Secretary of State for Health, Ivan Lewis MP, has responded to our Manifesto.
09 June 2006
Minutes for the latest meeting of the All Party Parliamentary Group are available to read.
05 June 2006
Greg Lake and his amazing band will be appearing in concert in aid of M.E. at the Royal Concert Hall Glasgow on Monday 25 September. All profits from ticket sales will go to Search M.E.
01 June 2006
Action for M.E. is looking for volunteers to run the BUPA Great North Run (GNR) on Oct 1.
17 May 2006
An Early Day Motion (EDM) congratulating AfME on its ‘More Than You Know’ campaign, was recently tabled by Edward Davey MP, the new Lib Dem spokesman on Education and Training. (The EDM is reproduced below).
11 May 2006
Action For M.E. presents a new manifesto for people with M.E. to 10 Downing Street.
09 May 2006
Research published today by AfME indicates that a hidden 55,000 people in Britain are so severely affected by M.E. that they are either bed-bound or house-bound.
09 May 2006
Media coverage over M.E. Awareness Week
28 April 2006
A public meeting of the All Party Parliamentary Group (APPG) on M.E. was held at Portcullis House, Westminster, 26 April 2006. The members who attended were MPs Andrew Stunell, Liz Blackman, Russell Brown, Dr Julian Lewis, Peter Luff and Tony Wright.
21 April 2006
The National Union of Students (NUS) has recognised that M.E. is widely misunderstood as an illness and has resolved to lobby the Government about services for people with M.E.
20 April 2006
Action for M.E. opened the first oral hearing of the Group on Scientific Research in to M.E. with a presentation by AfME Chair, Trish Taylor.
19 April 2006
Official confirmation of the All Party Parliamentary Group on M.E
18 April 2006
Action for M.E. are asking volunteers and fundraisers to take up the Grand Challenge by raising £1,000 at your own pace.
07 April 2006
Over 2,000 people have responded to the Action for M.E.’s survey on the severity and impact of M.E./CFS/PVFS.
06 April 2006
Sadly after six years Chris Clark has left Action for M.E.
03 April 2006
Next meeting of the All Party Parliamentary Group on M.E. to be open to the public.
31 March 2006
Action for M.E. has received over £500,000 from the Big Lottery Fund to establish a national M.E. Research Observatory.
29 March 2006
The Partnership for Research in CFS and M.E. (PRIME) has now put their Patient Evidence Database online.
27 March 2006
Students needed for a research project to examine gender and disability in entering the labour market.
14 March 2006
Given media reports of an impending NHS cash crisis, Action for M.E. (AfME) has been seeking reassurance about the continuation of the funding of NHS M.E. services and the commitment of Primary Care Trusts (PCTs) to the continuation of these services.
02 March 2006
Chronic Fatigue Syndrome and glandular fever link.
22 February 2006
Information about the 2006 campaign: M.E.- More than you know, is now available.
20 February 2006
AfME Patron, Lord Puttnam, receives BAFTA lifetime achievement award
08 February 2006
The Advisory Committee on Pesticides (ACP) disagree with the buffer zone recommendations of the Royal Commission on Environmental Pollution (RCEP).
02 February 2006
What do you think about the Government proposals to reform incapacity benefit?
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