Press releases
05 May 2009
Photographs and stories of people with M.E. are featured in a poster, leaflet and webpage set up by Action for M.E., to mark M.E. Awareness Week (10-16 May).
01 December 2008
The Queen's speech to Parliament on 3 December 2008, which sets out the Labour government's legislative agenda for the year, is expected to include the controversial welfare reform which aims to get people off benefits and "support" the sick and disabled back into work.
21 October 2008
A national consultation by Action for M.E., supported by the Disability Alliance and The Princess Royal Trust for Carers, has revealed that people with long-term fluctuating conditions are "terrified" that new, more stringent benefits assessment procedures and an enforced return to work, before they are well enough, could further damage their health.
13 May 2008
As the government fights to prove that it understands the hardship faced by the most vulnerable people in society, a national survey published this week shows that many people who are severely affected by Myalgic Encephalomyelitis/ Encephalopathy (M.E.), have to struggle through the appeals system before they are awarded Disability Living Allowance (DLA).
12 May 2008
Results (1) published today by Action for M.E. show that one third of people surveyed, who said that they had had graded exercise therapy (GET), reported that it made them worse.
01 May 2007
MEN who fear they have M.E. were today urged to visit their doctors, as it was revealed that thousands are putting their long-term health at risk through delayed diagnosis.
16 April 2007
M.E. Awareness Month – MAY 2007
Action for M.E., the UK’s leading M.E. charity, is launching M.E. Awareness Month by announcing research results showing how the illness impacts on men – and how delayed diagnosis is putting thousands in danger.
05 April 2007
Before Members of the Scottish Parliament stood down earlier this week, 2 April 2007, prior to elections on 3 May, a number of Parliamentary groups and committees prepared legacy papers to inform the work of the next session.
09 March 2007
This year, Action for M.E. has chosen the theme of Men and M.E. for its Awareness Week campaign, which runs from 7th – 13th May. But while the focus is on men, we are also looking at the impact of this disabling illness on carers – many of whom are wives and mothers who have had to become the main breadwinners for the family.
02 February 2007
Action for M.E.’s theme for its 2007 campaign is Men and M.E., which will include a major survey to discover how this chronic, debilitating illness impacts on men – including how the illness might affect men’s sense of masculinity and identity, and their likelihood of getting quickly diagnosed. A ‘fast’ diagnosis (i.e. within one year) has been shown to significantly reduce recovery time*.
05 January 2007
Action for M.E. - the UK’s leading charity for this chronic illness, which affects over 240,000 people in the UK, at a cost to the nation of £6.4 billion a year - will launch their annual awareness campaign on 7th May 2007.
19 December 2006
Action for M.E. has joined with other leading M.E. charities to express concern at the draft NICE guidelines
11 May 2006
Action For M.E. Presents A New Manifesto For People With M.E. To Number 10 Downing Street.
09 May 2006
Action for M.E.'s survey reveals the true impact of mystery illness
09 May 2006
Below are the stories of three people with M.E. - the subjects of Terry O'Neill's photographic study, undertaken for Action for M.E.'s "M.E.- More Than You Know" campaign.
31 March 2006
Action for M.E., the UK’s leading M.E. charity, has received over £500,000 from the Big Lottery Fund to establish a national M.E. Research Observatory. The grant will allow Action for M.E. to fund, for the first time, a coherent programme of research into the causes and distribution of M.E.
23 December 2005
Campaign 2006, "More than you know"
13 December 2005
205 MPs sign the Early Day Motion (no. 260) to draw government attention to the lack of scientific research into M.E.
21 November 2005
Action for M.E. welcomes the establishment of a new parliamentary group, set up to assess the progress of scientific research on M.E..
17 October 2005
The Department of Work and Pensions (DWP) have agreed to redraft the guidance on M.E./CFS regarding Disability Living Allowance(DLA) and Carers Allowance.
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